Saturday, August 30, 2008
Tuesday, August 26, 2008
I had occupational therapy to learn how to eat
After my surgery, I didn't know how to eat -- and I wasn't fond of having anything in my mouth, since so many things had been shoved in my mouth already. So the hospital assigned this nice occupational therapist, Michelle, to me, and she helped me learn how to eat. At first it was hard -- there's so much to coordinate, what with breathing and sucking and swallowing and all -- but I got used to it.
Monday, August 25, 2008
Another Caroline!
I met another Caroline today. She's 17 years old, and when she was born, she had the same heart surgery I did! She's really nice - she volunteers at Cedars now to tell all the babies and their parents that, even if you have a rough start, everything will work out. She is now a senior in high school, applying to colleges (her top choice is Yale, and I just know she'll be admitted! She's one smart cookie).
Caroline was also born at Cedars, and had the same surgery when she was only a few days old. She recovered, spent some time as a normal baby and toddler, and had her second surgery (the same one I will have) a few years later. She stopped by my room to tell my mommy and daddy not to worry, and that I would grow up to be a normal precocious kid, not remembering any of this. I think my parents felt better that I wouldn't have long-term effects as a result of my heart condition or the surgeries I need. I think it really helped that she told them that, the weekend before I met her, Caroline did a triathalon! What a rock star. I want to grow up to be just like her.
I'm glad I won't have to worry about limitations on my activity or about long-term effects. I sure like to be active, and it would really put a damper on my style if I had to restrict my play.
Caroline was also born at Cedars, and had the same surgery when she was only a few days old. She recovered, spent some time as a normal baby and toddler, and had her second surgery (the same one I will have) a few years later. She stopped by my room to tell my mommy and daddy not to worry, and that I would grow up to be a normal precocious kid, not remembering any of this. I think my parents felt better that I wouldn't have long-term effects as a result of my heart condition or the surgeries I need. I think it really helped that she told them that, the weekend before I met her, Caroline did a triathalon! What a rock star. I want to grow up to be just like her.
I'm glad I won't have to worry about limitations on my activity or about long-term effects. I sure like to be active, and it would really put a damper on my style if I had to restrict my play.
Friday, August 22, 2008
I had heart surgery today
Surgery began at 8am, and they were done fairly quickly. They told my parents by 10am that I was out of surgery and in recovery, and that they could join me in the PICU (Pediatric Intensive Care Unit) shortly to help me recover and eventually come home. I hope that's soon.
Tuesday, August 19, 2008
Meeting daddy's parents
Monday, August 18, 2008
Baby LoJack
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